DART: Dupuytren's Advocates for Radiation Therapy. A Facebook group that aims to serve the needs of the newly diagnosed as well as those who've already gone from diagnosis to treatment. This is a group of real people that are finding their disease goes into remission when having low dose radiation therapy(RT )
Low dose radiation therapy is used to stop the progression of the disease. It is appx 80% effective. With no cure for our disease, this seems to be one of the best options for stopping the disease from spreading
Low Dose radiation therapy is completely non-invasive. It's as simple as getting a x-ray. Your Radiation Oncologist (RO), will mark up your hands/feet (they call it mapping), the team that delivers your radiation will make a mold of your hand or foot, and when ready for treatment they will typically place the hand or foot into the mold and design a shield so that the RT will deliver in the exact spot needed, they will then typically apply a piece of bolus (sort of wet fabric) over the site. The will ask you to stay still and tell you when the RT begins and ends. It is typically under 1 minute. The standard treatment is 5 days, 3 grays a day and a waiting period of 8-12 weeks and then another 5 days, 3 grays a day. That's it!
I had Ledderhose disease appx 3 years prior to having low dose radiation therapy in 2015. My foot remains in remission, no new growth and to my amazement the nodules are completely flat. I have no pain or tenderness any longer. I reside in the USA
I had low dose radiation therapy appx 8 years ago. I was the first patient of my local oncologist. My disease has remained stable. I reside in the USA
I reside in Canada. I have had successful RT on both my hand and foot.
on Facebook at https://www.facebook.com/groups/1622748151282109/