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DART: Dupuytren's Advocates for Radiation Therapy. A Facebook group that aims to serve the needs of the newly diagnosed as well as those who've already gone from diagnosis to treatment. This is a group of real people that are finding their disease goes into remission when having low dose radiation therapy(RT )
Low dose radiation therapy is used to stop the progression of the disease. It is appx 80% effective. With no cure for our disease, this seems to be one of the best options for stopping the disease from spreading
Low Dose radiation therapy is completely non-invasive. It's as simple as getting a x-ray. Your Radiation Oncologist (RO), will mark up your hands/feet (they call it mapping), the team that delivers your radiation will make a mold of your hand or foot, and when ready for treatment they will typically place the hand or foot into the mold and design a shield so that the RT will deliver in the exact spot needed, they will then typically apply a piece of bolus (sort of wet fabric) over the site. The will ask you to stay still and tell you when the RT begins and ends. It is typically under 1 minute. The standard treatment is 5 days, 3 grays a day and a waiting period of 8-12 weeks and then another 5 days, 3 grays a day. That's it!
I had Ledderhose disease appx 3 years prior to having low dose radiation therapy in 2015. My foot remains in remission, no new growth and to my amazement the nodules are completely flat. I have no pain or tenderness any longer. I reside in the USA
I had low dose radiation therapy appx 8 years ago. I was the first patient of my local oncologist. My disease has remained stable. I reside in the USA
I reside in Canada. I have had successful RT on both my hand and foot.
on Facebook at https://www.facebook.com/groups/1622748151282109/
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Contact information provided below for radiation oncologists who have treated for DD/LD. Comments or opinions expressed here or on DART are not intended to diagnose or prevent disease. Advice or comments should not be relied upon unless confirmed by your treating physician. No doctor-patient relationship is intended and members are advised to consult their doctors for medical advice. No representation is made about the quality or professional competency of the listed doctors. This listing is compiled from referrals of DART members and is provided as a place for you to begin your own research. If you find the contact info outdated or in error, please comment on DART where it can be corrected. You might also google the doctor or clinic to find updated contact information. Many of these doctors also practice at secondary locations that may be closer to you. Check their website. In addition to their clinical practice, many of these radoncs are also on the faculty of local medical schools where they teach radiation oncology. If you have doctor or clinic information not listed below, please share with DART so it can be made available to others looking for treatment in that location. some photos from dupuytrens.org Thank you.
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